Field’s disease is considered to be one of the rarest known diseases in the world, with only wo diagnosed causes in history. The frequency of this disease is therefore 1 in approximately 3.75 billion. It is named after Welsh twins Catherine and Kirstie Fields. This disease is a neuromuscular disease, causing muscular degeneration.
The disease was first noticed when the twins were four. Doctors were unable to identify it were not able to match it to any known diseases. As a result, the Fields sisters had to undergo numerous tests, but no treatment was found. No definitive cause had been determined, and doctors generally concluded that they were born with it. The disease does not have a scientific name as doctors don’t have enough information to name it, but however the disease is labelled as a Neuromuscular disease, and it is a Genetic and non-infectious disease.
The symptoms of this disease are:
- Deteriorating muscle
- Hands shaking
- Damaged nerve
- Involuntary muscles movement
All these are caused because of nerve problems and also the slow deterioration of muscles. The patient can have more than 100 muscle spasm in a day which are uncontrollable and leave them in great pain. The rare disease can also rob you of your voice.
Due to the rarity and the chronic nature of the disease, the cost of the treatment can be very high. This is where crowdfunding India comes to the rescue. In the era of social media and digital payments, it provides a utilitarian platform for a quick and convenient way to transparently ask for and renders financial assistance to meet such pressing and unforeseen medical expenses.
In simple words, Crowdfunding is the process of funding a project, venture, a social or a personal cause (medical, NGO, education, sports) through contributions from a large group of individuals, primarily online with the help of crowdfunding India platforms and social media.
Crowdfunding sites in India have helped patients get much-needed treatment when their friends and family have no means to fund such lifesaving care. By setting up a mechanism that takes funds from donors to those who desperately need such treatments, they help build a trustworthy bridge between those in need and those who want to help. We have also witnessed an interesting trend where more and more doctors recommend fundraising to patients and help them set up fundraisers.